Chronicle / Bergamo City
Tuesday 16 August 2022
On television The story of the first patient in the world successfully treated for Crigler-Najjar syndrome.
The service that the Superquark editorial team shot in recent weeks at the Papa Giovanni XXIII Hospital in Bergamo starring Gaia, the first patient in the world successfully treated for Crigler-Najjar syndrome, was broadcast in the special episode of Saturday 13 August.
This ultra-rare disease has liver transplantation as the only possible therapy. Those affected spend the night, for their whole life, under the blue light of ultraviolet rays.
Gaia’s life changes when she decides to undergo an international protocol of experimentation with gene therapy, promoted by Généthon in collaboration with the «CureCN» network and conducted by Lorenzo D’Antiga, director of the Pediatrics of the Papa Giovanni XXIII Hospital.
Within the service, to illustrate the researchers’ work, images of a cartoon created by the Bozzetto studio for the Amici della Pediatria association were also used to help understand how gene therapy works.
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