Iga Kaczmarczyk from Opatów has been struggling with SMA almost from birth. The girl’s parents heard this terrible diagnosis when their little one was 1.5 months old. From that moment on, the difficult fight for the life of their little one began.
Barely 4-month-old girl is struggling with another serious threat, which is infection for her. Iga has bronchitis. The baby has been staying in the hospital in Kielce since Tuesday.
“Her condition is serious. Iga has respiratory distress. We are desperate” – wrote Mrs. Jolanta, the girl’s mother. As she added, there were no signs of an infection at all. “Igusia has a fever of almost 40 degrees. She is choking all the time, we do not know what to do. My baby started another fight for life” – admitted the desperate woman.
“I can’t write anything more, my heart is breaking, tears are falling from my eyes. We are only at the beginning of the road to raise an unimaginable amount for gene therapy, and we already know today that we do not have time … Please, save my child … “- asks Jolanta.
Iga’s mother also posted a moving video on the web, in which she appeals to save her daughter.
“With all my heart I am begging you for support, for sharing our collection. Keep your fingers crossed for Igusia” – confessed the girl’s mother.
A baby with SMA needs help
Iga has a terminal illness that was diagnosed when she was 1.5 months old. “When we heard the verdict, we could not believe it … But not so long ago, we were involved in helping another child who collected a huge amount for gene therapy. And now it turned out that it also applies to us …” – explained Ms Jolanta. The world of a happy family has collapsed. Iga was a long-awaited child.
“Igunia was born on July 1, 2021 and at the beginning nothing foreshadowed the drama that we are about to experience. She is pregnant without complications, just like giving birth. We went home with my husband, enjoying what is most important – that our baby is healthy. At that time, we did not know how much error we live in “- recalled Iga’s mother.
As she admitted, Iga seemed weak from the beginning. “She did not twist her head, she moved her arms and legs poorly. I scolded myself in my mind that I was probably exaggerating, and my daughter was developing at her own pace. A boy suffering from SMA lived near us, and we got involved in helping him. me that my daughter is also sick. And yet SMA is extremely rare “- explained Mrs. Jola.
When Iga stopped moving her legs completely, she started to breathe strangely and choked too often while eating, she was tested. It was SMA that had taken so much from the baby.
Zosia is only three months old and she has to fight for her life. I need the most expensive medicine in the world
Fundraising for the treatment of Iga
Family and friends are fighting for gene therapy to stop SMA as soon as possible. Unfortunately, the cost of such treatment is insanely high.
“That is why we decided to collect for the most expensive medicine in the world, which has already helped so many children. We want our Igusia to be among them. We wholeheartedly ask – help us collect this gigantic amount and stop this cruel disease as soon as possible” – Iga’s parents ask , Mrs. Jola and Mr. Darek.
You can also help Iga by participating in auctions. More on this topic HERE.
She ran out in pajamas and slippers. She was holding her son in her arms. Stas was not breathing. The firefighters came to help
(Source: Fakt.pl, siepomaga.pl)